Who are we?
Syngap Global Network is a collaboration between organisations and parents representing the Syngap community in their country.
We have come together to drive the global unification of Syngap1-related efforts and initiatives.
Our mission is to coordinate our efforts globally, in turn creating strong local communities for our families. As a result, Syngap families will feel less isolated, having the resources they need to help their children the best they can.
With growing number of more than 1164 diagnosed patients in the world it is critical that we coordinate our efforts and spread awareness.
What we are not
Syngap Global Network is not an organisation or foundation. It is a pure and simple collaboration.
Syngap Global Network will not raise money for Syngap1-related causes, since we are not a legal entity. If you wish to donate please reach out to the main contact in your country.
To find information in your country please visit the International Orgs tab.
How many people have SYNGAP1?
Every quarter SynGAP Research Fund (SRF) and partner organisations in the Syngap Global Network (SGN) tally up the newly diagnosed patients in our respective regions and come up with a global count. Today, the count stands at 1164 patients.