Privacy policy

Last updated: January 15th 2024 – Laverriere Sebastien


Welcome to , a platform dedicated to providing information and support to families of children with Syngap1 Syndrome. We respect your privacy and are committed to protecting any information you share with us. Please read this Privacy Policy carefully to understand our practices regarding your personal information.


1. Information We Collect

Non-Personal Information

We do not collect any personally identifiable information about you when you visit our website. We use Plausible tool to collect aggregated anonymous statistics, such as the number of visitors, the pages visited, and the duration of your visit. This information helps us improve the content and user experience of our website.


We may use cookies to enhance your browsing experience. Cookies are small text files stored on your device that help us analyze website usage. You can choose to disable cookies in your browser settings, but please note that some features of the site may not function properly as a result.


2. User Contributions

Our website primarily features information provided by knowledgeable parents of children with Syngap1 Syndrome. While we strive to ensure the accuracy of the content, visitors are encouraged to consult medical professionals for vetted answers and personalized advice.


3. Sharing of Information

We do not sell, trade, or otherwise transfer your personal information to third parties. We may share aggregated and anonymized statistical information about our website usage with partners or sponsors, but this information will not identify you personally.


4. Security Measures

We take reasonable steps to ensure the security of your information. However, please be aware that no online platform can guarantee absolute security.


5. Third-Party Links

Our website may contain links to third-party websites. We are not responsible for the privacy practices or content of these external sites. We recommend reviewing the privacy policies of any linked websites you visit.


6. Changes to this Privacy Policy

We reserve the right to update or modify this Privacy Policy at any time. Any changes will be effective immediately upon posting on this page. Please check this page periodically for updates.


7. Contact Us

If you have any questions or concerns about our Privacy Policy, please contact us at .

Thank you for visiting We appreciate your trust and are dedicated to providing a safe and informative environment for families of children with Syngap1 Syndrome.