INTERNATIONALE ORGANISATIONEN
DEUTSCHLAND
Der SYNGAP Elternhilfe e.V. setzt sich im deutschsprachigen Raum (D, A, CH) für die Themen Awareness, Patientenarbeit und Forschung ein. Das Motto „Gemeinsam sind wir stark“ ist dabei Programm.
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FRANCE & CANADA
Overcôme Syngap 1 (Cômbattre Syngap1) a pour but de faire connaître la maladie génétique liée au gène SYNGAP1 et d’aider les familles francophones affectées par cette maladie.
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USA - UK - LATAM
The values of the SynGAP Research Fund are collaboration, transparency, and urgency.
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SPAIN
Este síndrome es una enfermedad rara causada por una mutación en el gen Syngap1 que afecta a unos 883 casos a nivel mundial, de los cuales 30 residen aquí en España.
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AUSTRALIA
Syngap Research Fund Australia is run by Australian parents. We are involved with Syngap community through SGN and the Genetic Epilepsy Team Australia (GETA).
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SWEDEN
Det här är en grupp som är till för anhöriga till någon som har blivit diagnostiserad med Syngap 1.
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ARGENTINA
SYNGAP1 ARGENTINA
info@syngap1.com.ar
Tel 54911 3111-5064
IG @syngap1.argentina
www.syngap1.com.ar
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Poland
This website is created by a group of parents, thanks to whom the first association in Poland regarding the SYNGAP1 mutation was founded.
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Republic of Ireland
If you are a family in the Republic of Ireland with a diagnosis of Syngap1, or a Syngap1 family visiting the Republic of Ireland, feel free to contact Michele Giblin.
WhatsApp/phone: +353 (0)87 793 7168
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WhatsApp/phone: +353 (0)87 793 7168
LATAM
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